After the consultation with Dr. Hunter in KC, Dr. Honeycutt has changed the protocol for treatment.
Starting on the 20th of April, I will be seen by dr. for exam. Tuesday, Wednesday, and Thursday I will be in office for treatment. The new treatment will take a couple hours everyday. The new chemo drug is fosfamide. This drug can cause severe bladder problems so will then be given Mesna to protect bladder. This needs to be continuously given for 72 hours so will wear a pump when I leave the office. On Friday, in the afternoon I will go back in to have the pump disconnected. I will then have two weeks off and start over again. There is the possiblity that I will need to have 8 treatments instead of 6. I will have a port put in sometime next week. I have education on chemo next Wednesday afternoon so have a lot going on.
I am a little overwhelmed this afternoon, so will try and get some rest.
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Ok, I've had to type and retype this several times to keep the expletives out of this note, let's see if I manage to this time.
ReplyDeleteThis sucks, this whole thing sucks. I don't like you having three treatments a week. I don't like you having to take a drug to keep the chemo from attacking your bladder. I don't like you having chemo or cancer at all.
Not a very peaceful message, but it's my true thoughts right now.
I love you so much and wish I could be with you at least that first week - to hold your hand, nag at you, scowl at the doctors and maybe make you laugh a little.
I will talk to you soon
love
neecie